A new hat for librarians: providing REDCap support to establish the library as a central data hub

Kevin Read, Fred Willie Zametkin LaPolla

Abstract


Background: REDCap, an electronic data capture tool, supports good research data management, but many researchers lack familiarity with the tool. While a REDCap administrator provided technical support and a clinical data management support unit provided study design support, a service gap existed.

Case Presentation: Librarians with REDCap expertise sought to increase and improve usage through outreach, workshops, and consultations. In collaboration with a REDCap administrator and the director of the clinical data management support unit, the role of the library was established in providing REDCap training and consultations. REDCap trainings were offered to the medical center during the library’s quarterly data series, which served as a springboard for offering tailored REDCap support to researchers and research groups.

Conclusions: Providing REDCap support has proved to be an effective way to associate the library with data-related activities in an academic medical center and identify new opportunities for offering data services in the library. By offering REDCap services, the library established strong partnerships with the Information Technology Department, Clinical Data Support Department, and Compliance Office by filling in training gaps, while simultaneously referring users back to these departments when additional expertise was required. These new partnerships continue to grow and serve to position the library as a central data hub in the institution.

Keywords


REDCap; Clinical Data Management; Data Collection; Education; Training; Workshops; Consultations; Data Governance

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References


Project REDCap [Internet]. Vanderbilt University; 2004 [updated 11 Aug 2017; cited 7 Jul 2017]. .

Harris PA, Taylor R, Thielke R, Payne J, Gonzalez N, Conde JG. Research electronic data capture (REDCap)--a metadata-driven methodology and workflow process for providing translational research informatics support. J Biomed Inform. 2009 Apr;42(2):377–81.

Filkins BL, Kim JY, Roberts B, Armstrong W, Miller MA, Hultner ML, Castillo AP, Ducom JC, Topol EJ, Steinhubl SR. Privacy and security in the era of digital health: what should translational researchers know and do about it? Am J Transl Res. 2016;8(3):1560–80.

Zozus MN, Lazarov A, Smith LR, Breen TE, Krikorian SL, Zbyszewski PS, Knoll SK, Jendrasek DA, Perrin DC, Zambas DN, Williams TB, Pieper CF. Analysis of professional competencies for the clinical research data management profession: implications for training and professional certification. J Am Med Inform Assoc. 2017 Jul 1;24(4):737–45.

Dugas M, Neuhaus P, Meidt A, Doods J, Storck M, Bruland P, Varghese J. Portal of medical data models: information infrastructure for medical research and healthcare. Database (Oxford). 2016 Feb 11;2016:bav121-bav.

Lyon JA, Garcia-Milian R, Norton HF, Tennant MR. The use of Research Electronic Data Capture (REDCap) software to create a database of librarian-mediated literature searches. Med Ref Serv Q. 2014;33(3):241–52.

Patridge E, Bardyn T. Change leadership: partnering with institutional stakeholders to address the need for collaboration spaces and data management support for research success. Presented at: MLA ’17, the 117th Medical Library Association Annual Meeting; Seattle, WA; May 29, 2017.

Read KB, LaPolla FWZ, Tolea MI, Galvin JE, Surkis A. Improving data collection, documentation, and workflow in a dementia screening study. J Med Libr Assoc. 2017 Apr;105(2):160–6. DOI: http://dx.doi.org/10.5195/jmla.2017.221.

Williams J, McCrillis A, McGowan R, Nicholson J, Surkis A, Thompson H, Thompson H, Vieira D. Leveraging technology and staffing in developing a new liaison program. Med Ref Serv Q. 2014;33(2):157–66.

Surkis A, LaPolla FWZ, Contaxis N, Read KB. Data Day to Day: building a community of expertise to address data skills gaps in an academic medical center. J Med Libr Assoc. 2017 Apr;105(2):185–91. DOI: http://dx.doi.org/10.5195/jmla.2017.35.

i2b2: informatics for integrating biology and the bedside [Internet]. Partners HealthCare System; 2004 [updated 2017; cited 28 Jul 2017]. .




DOI: https://doi.org/10.5195/jmla.2018.327

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Copyright (c) 2018 Kevin Read, Fred WZ LaPolla

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