Providing real-time resources in support of LGBTQ+ and HIV+ populations as information experts on the ECHO hub team: a case report
Keywords:community health services, telemedicine, sexual and gender minorities, information literacy
Background: Project ECHO (Extension for Community Healthcare Outcomes) is a telehealth initiative that aims to reduce disparities in delivery of health care by leveraging technology and local expertise to provide guidance on specialized subjects to health care providers across the world. In 2018, a new ECHO hub convened in Indianapolis with a focus on health care for individuals in the lesbian, gay, bisexual, trans, and queer (LGBTQ+) populations. This ECHO iteration was one of the first of its kind and would soon be followed by a new human immunodeficiency virus (HIV) ECHO as well.
Case Presentation: In a novel approach, information professionals participated in the early planning stages of the formation of these ECHO teams, which enabled the provision of real-time medical evidence and resources at the point-of-need once the teams were launched. This case study demonstrates proof of concept for including health sciences librarians and/or information professionals in the ECHO as hub team members. In this case study, the authors describe and quantify the value added to the HIV and LGBTQ+ ECHO sessions by the medical librarians, as well as provide a template for how other telehealth initiatives can collaborate with their local health information professionals.
Conclusions: Librarian involvement in Project ECHO over the past three years has been enthusiastically received. The librarians have contributed hundreds of resources to ECHO participants, helped build and curate resource repositories, and expanded the embedded librarian program to an additional two ECHO iterations. ECHO hub team members report high rates of satisfaction with the performance of embedded librarians and appreciate the provision of point-of-need evidence to ECHO participants.
Brettle A, Maden M, Payne C. The impact of clinical librarian services on patients and health care organisations. Health Info Libr J. 2016 Jun;33(2):100–20. DOI: https://doi.org/10.1111/hir.12136. PMID: 26887653.
DeRosa AP, Baltich Nelson B, Delgado D, Mages KC, Martin L, Stribling JC. Involvement of information professionals in patient- and family-centered care initiatives: a scoping review. J Med Libr Assoc. 2019 Jul;107(3):314–22. DOI: https://doi.org/10.5195/jmla.2019.652. PMID: 31258437. PMCID: PMC6579588.
Esparza JM, Shi R, McLarty J, Comegys M, Banks DE. The effect of a clinical medical librarian on in-patient care outcomes. J Med Libr Assoc. 2013 Jul;101(3):185–91. DOI: https://doi.org/10.3163/1536-5050.101.3.007. PMID: 23930088; PMCID: PMC3738078.
Winning MA, Beverley CA. Clinical librarianship: a systematic review of the literature. Health Info Libr J. 2003 Jun;20 Suppl 1:10–21. DOI: https://doi.org/10.1046/j.1365-2532.20.s1.2.x. PMID: 12757432.
Wagner KC, Byrd GD. Evaluating the effectiveness of clinical medical librarian programs: a systematic review of the literature. J Med Libr Assoc. 2004 Jan;92(1):14–33. PMID: 14762460; PMCID: PMC314100.
Medical Library Association. About MLA [internet]. Chicago, IL: The Association [rev. 1 May 2017; cited 19 Oct 2020]. < https://www.mlanet.org/p/cm/ld/fid=21>.
Petrey J. Development and implementation of an LGBT initiative at a health sciences library: the first eighteen months. J Med Libr Assoc. 2019 Oct;107(4):555–9. DOI: https://doi.org/10.5195/jmla.2019.422. PMID: 31607812; PMCID: PMC6774541.
Weiner SA. Sexual minority health: a bibliography and preliminary study of the book literature. Med Ref Serv Q. 2017 Jan-Mar;36(1):49–61. DOI: https://doi.org/10.1080/02763869.2017.1260320. PMID: 28112632.
US National Library of Medicine. HIV/AIDS web resources [Internet]. Bethesda, MD: National Library of Medicine [rev. March 2018; cited 19 Oct 2020]. <https://sis.nlm.nih.gov/outreach/hivaidsinformationresources.pdf>.
HIV.gov. AIDSinfo [Internet]. Washington, DC: US Department of Health and Human Services [rev. 23 Feb 2020; cited 19 Oct 2020]. <https://www.hiv.gov/authors/aidsinfo>.
University of New Mexico School of Medicine. Project ECHO [internet]. Albuquerque, NM [cited 3 Jun 2021]. <https://hsc.unm.edu/echo/>.
Kuntz GM, Schaefer N, Norton HF, Tennant MR. HIV/AIDS outreach: curriculum development and skills training to health and information professionals. Med Ref Serv Q. 2018 Jan-Mar;37(1):60–73. DOI: https://doi.org/10.1080/02763869.2018.1404389. PMID: 29327981; PMCID: PMC6097181.
McBain RK, Sousa JL, Rose AJ, Baxi SM, Faherty LJ, Taplin C, Chappel A, Fischer SH. Impact of Project ECHO models of medical tele-education: a systematic review. J Gen Intern Med. 2019 Dec;34(12):2842–57. DOI: https://doi.org/10.1007/s11606-019-05291-1. PMID: 31485970; PMCID: PMC6854140.
Menard L. Resources for LGBTQ+ patient care. PowerPoint presented at LGBTQ+ ECHO session; 2020. Indianapolis IN. Available from: <http://hdl.handle.net/1805/26107>.
Indiana University School of Public Health. ECHO [Internet]. Indianapolis, IN [rev. 2021; cited 3 Jun 2021]. <https://echo.iu.edu/>
Davies K, Harrison J. The information-seeking behaviour of doctors: a review of the evidence. Health Info Libr J. 2007 Jun;24(2):78–94. DOI: https://doi.org/10.1111/j.1471-1842.2007.00713.x. Erratum in: Health Info Libr J. 2010 Dec;27(4):341. Harrison, Janet [added]. PMID: 17584211.
Wosik J, Fudim M, Cameron B, Gellad ZF, Cho A, Phinney D, Curtis S, Roman M, Poon EG, Ferranti J, Katz JN, Tcheng J. Telehealth transformation: COVID-19 and the rise of virtual care. J Am Med Inform Assoc. 2020 Jun 1;27(6):957–62. DOI: https://doi.org/10.1093/jamia/ocaa067. PMID: 32311034; PMCID: PMC7188147.