Involvement of information professionals in patient- and family-centered care initiatives: a scoping review

Authors

  • Antonio P. DeRosa Oncology Consumer Health Librarian, Samuel J. Wood Library & C.V. Starr Biomedical Information Center, Weill Cornell Medical College, New York, NY https://orcid.org/0000-0003-3518-0497
  • Becky Baltich Nelson Clinical and Systems Librarian, Samuel J. Wood Library & C.V. Starr Biomedical Information Center, Weill Cornell Medical College, New York, NY
  • Diana Delgado Associate Director, Information, Education and Clinical Services, Samuel J. Wood Library & C.V. Starr Biomedical Information Center, Weill Cornell Medical College, New York, NY https://orcid.org/0000-0002-6290-3497
  • Keith C. Mages Clinical Medical Librarian, Samuel J. Wood Library & C.V. Starr Biomedical Information Center, Weill Cornell Medical College, New York, NY https://orcid.org/0000-0003-2102-1858
  • Lily Martin Health Sciences Librarian, Daniel Carroll Payson Medical Library, North Shore University Hospital, Manhasset, NY
  • Judy C. Stribling Weill Cornell Medical CollegeAssistant Director, Clinical Services, Samuel J. Wood Library & C.V. Starr Biomedical Information Center, Weill Cornell Medical College, New York, NY https://orcid.org/0000-0001-7646-8484

DOI:

https://doi.org/10.5195/jmla.2019.652

Keywords:

Patient-Centered Care, Family-Centered Care, Patient Education, Patient Experience, Consumer Health, Clinical Librarian, Health Literacy, Participatory Care, Patient Empowerment, Decision-Making

Abstract

Objective: The goal of this scoping review was to collect data on patient- and family-centered care (PFCC) programs and initiatives that have included the direct involvement of librarians and information professionals to determine how librarians are involved in PFCC and highlight opportunities for librarians to support PFCC programs.

Methods: Systematic literature searches were conducted in seven scholarly databases in the information, medical, and social sciences. Studies were included if they (1) described initiatives presented explicitly as PFCC programs and (2) involved an information professional or librarian in the PFCC initiative or program. Based on the definition of PFCC provided by the Institute for Patient- and Family-Centered Care, the authors developed a custom code sheet to organize data elements into PFCC categories or initiatives and outcomes. Other extracted data elements included how the information professional became involved in the program and a narrative description of the initiatives or programs.

Results: All included studies (n=12) identified patient education or information-sharing as an integral component of their PFCC initiatives. Librarians were noted to contribute to shared decision-making through direct patient consultation, provision of health literacy education, and information delivery to both provider and patient with the goal of fostering collaborative communication.

Conclusions: The synthesis of available evidence to date suggests that librarians and information professionals should focus on patient education and information-sharing to support both patients or caregivers and clinical staff. The burgeoning efforts in participatory care and inclusion of patients in the decision-making process pose a unique opportunity for librarians and information professionals to offer more personalized information services.

Author Biographies

Antonio P. DeRosa, Oncology Consumer Health Librarian, Samuel J. Wood Library & C.V. Starr Biomedical Information Center, Weill Cornell Medical College, New York, NY

Oncology Consumer Health Librarian, Samuel J. Wood Library & C.V. Starr Biomedical Information Center

Becky Baltich Nelson, Clinical and Systems Librarian, Samuel J. Wood Library & C.V. Starr Biomedical Information Center, Weill Cornell Medical College, New York, NY

Clinical & Systems Librarian, Samuel J. Wood Library & C.V. Starr Biomedical Information Center

Diana Delgado, Associate Director, Information, Education and Clinical Services, Samuel J. Wood Library & C.V. Starr Biomedical Information Center, Weill Cornell Medical College, New York, NY

Associate Director, Information, Education and Clinical Services, Samuel J. Wood Library & C.V. Starr Biomedical Information Center

Keith C. Mages, Clinical Medical Librarian, Samuel J. Wood Library & C.V. Starr Biomedical Information Center, Weill Cornell Medical College, New York, NY

Clinical Medical Librarian, Samuel J. Wood Library & C.V. Starr Biomedical Information Center

Lily Martin, Health Sciences Librarian, Daniel Carroll Payson Medical Library, North Shore University Hospital, Manhasset, NY

Daniel Carroll Payson Medical Library

Judy C. Stribling, Weill Cornell Medical CollegeAssistant Director, Clinical Services, Samuel J. Wood Library & C.V. Starr Biomedical Information Center, Weill Cornell Medical College, New York, NY

Assistant Director, Clinical Services, Samuel J. Wood Library & C.V. Starr Biomedical Information Center

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Published

2019-07-01

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Section

Knowledge Synthesis